Tuesday, June 22, 2021
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Mother tells of walks in sun with daughter at centre of life-support court fight

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A woman waiting for appeal court judges to decide whether her five-year-old brain-damaged daughter should be allowed to die has told how she has enjoyed unexpected walks in the spring sunshine with the little girl.

Paula Parfitt said her daughter Pippa Knight, who is in a vegetative state at the Evelina children’s hospital in London has been able to go outside the hospital attached to a portable ventilator.

Ms Parfitt, who is in her early 40s and from Strood Kent said she would not have thought such walks would be possible a few weeks ago.

Doctors treating Pippa say ending life-support treatment would be in her best interests.

She thinks Pippa should leave hospital and go home, and wants specialists to stage a home-care trial, using a portable ventilator.

A High Court judge earlier this year ruled against Ms Parfitt.

Mr Justice Poole decided, in early January, that treatment could lawfully end and said Pippa should be allowed to die.

Ms Parfitt mounted a challenge in the Court of Appeal.

Appeal judges considered the case in February and have yet to announce their decision.

Paula Parfitt and daughter, Pippa Knight / PA Media

“A few weeks ago I didn’t think these walks would be taking place at all,” said Ms Parfitt, who is being backed by campaign group the Society for the Protection of Unborn Children.

“We’ve been out three times in the last week with a portable ventilator.

“This shows people what is possible.”

She suggested that a similar arrangement might make it possible for Pippa to live at home and added: “A more modern ventilator which I would have at home would be even better and offer Pippa even more movement and help her even more.”

A barrister representing Ms Parfitt had told appeal judges that independent experts based at other children’s hospitals thought a home-care trial was in Pippa’s best interests.

Vikram Sachdeva QC said other hospitals might have agreed to a home-care trial.

Mr Sachdeva said Pippa was not suffering pain and there was “genuine scope for debate” about what was in her best interests.

He said Pippa would not live for a long time, possibly months, and Ms Parfitt wanted her to die at home.

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